Ohio Idols for Independence

A guest post today. It really speaks for itself.  If you have a moment, we appreciate your time. Thanks.

Hi! I’m writing to invite you, your family and friends to the first annual Ohio Idols for Independence benefit concert. Our goal is to raise thousands of dollars to help kids with cerebral palsy find their voice at home, at school and in their communities.

This event is close to my heart because my daughter, Adriana, lives with cerebral palsy. While she falls on the severe end of CP, the amazing advancements in technology have given her the gift of independent mobility and communication.

I believe when kids with CP find their voice, regardless of physical ability, they experience true independence. Some kids find their voice through music, sports or dance. Other kids, like Adriana, need specialized care and equipment to find their voice. And as many of you know, these things are expensive. Proceeds from the event go to The MJB Foundation to provide funding for children so they get the specialized care, equipment and services they need just to be a kid.

Please join us in helping kids with CP by purchasing your tickets TODAY! Tickets are just $16 and they are available online at www.ohio-idol.com. You can also purchase tickets directly through me by writing a check to The MJB Foundation for the number of tickets you want. Just send me an email and I’ll bring them to you.

If you have any questions, you can email me or call me at 614-309-0799. For information about The MJB Foundation visit www.mjbfoundation.org.

Thank you!

Patty Lyons

Patty Lyons
p.lyons@sbcglobal.net
Parent & Chapter Leader
CP Parent Columbus, A Family Resource Group for Cerebral Palsy
Reaching For The Stars Central Ohio Chapter
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The Speech

(This is what it sounds like in my head. Who knows how it's going to come out...)

They say that: “Everyone who has ever passed through the doors of Bishop Ready knows that for as long as they live they have a home here and they are always welcome back.

Today, I feel that, and I thank you. I want to also thank those who nominated me, and accepted me into this select group. I am humbled by this honor, and I hope that in my life I am able to continue to do the work that brought me here, that is my passion. I want to thank an incredibly supportive family, a whole team of people, hundreds of supporters, and all the folks who inspire me to do the work I do. They’re the ones who deserve the recognition.

I was very nervous about being here today. I asked my girls, who some of you know, what I could say that wouldn’t make me sound like “some old” guy.

They just laughed.

So, I asked another friend, and she told me to just talk about what I do.  

As I look out at all of you I remember myself in those very same seats. I was excited for the future, even if I had no idea what that future held.

It took me sometime to figure it all out, and that’s okay. All I really knew was that whatever I did, it probably shouldn’t involve math. More importantly, I wanted to do it as best as I possibly could.

I learned here at Ready that each and every one of us has the ability to have an impact on our environment, and most especially the people around us.

Just being a Dad, carrying on my daughter Meghan’s legacy through our work with The MJB Foundation, and being the best Dad I can be to my daughters Kailey and Delaney I’ve found my life’s work, and somehow that lead me here today.

At The MJB Foundation we strive everyday to make sure that children, all of the children can know the real Joy that should be childhood.

As my children have grown I have stressed to them, and to their friends and other youth I have worked with, the importance of finding a way to enjoy their childhood.

That’s what life should be all about - Joy - and that is my wish for you today.

Thank you!

If Jim Brochowski can do it...

Maybe this is why:

As I stood up at third base I could see him looking at me and shaking his head. I had just smashed, (Hey I was 13 I still smashed things.) the ball into the fence in left field and while I was disappointed it didn’t go over I was also thrilled with what was probably the best hit of my life.
I scored on the next play and as I walked up to my Dad he said: “Just think how far it would have gone if it had been a strike.”

Ouch!

He was right though, the ball I hit was pitched almost over my head. As the infamous movie line goes: I like the high ones!

Now, I love my Dad and I don’t blame him for anything about my upbringing, but my point is I always have greater expectations, It’s taken a long time for me to learn how to be satisfied, and well, I don’t handle praise all that well.

The year to date has been a good one. The MJB Foundation has raised almost $7,000 with an event still to come, I’ve lost 42 pounds, (as of this morning), and I learned a couple of weeks ago that I’m to be inducted into my high school’s hall of fame, mostly for my work with the foundation.

Right and left I’m being congratulated and praised. Folks are using words like inspirational, and...

… And I have no idea how to handle this.

My wife even wants to have a celebratory get together after the HOF induction. She created a Facebook event, and made me a host so I can invite people who are on my friends list, but maybe not on hers.

Really?

“Hi, Come celebrate me?”

That just feels wrong. Egotistical, making a big deal out of nothing. To me, it’s just weird.

I feel like if I can do what I do, anybody can do what I do, and the reality is it’s not me. It’s an incredibly supportive family. It’s a whole team of people. It’s hundreds of supporters. It’s the folks who inspire me that help me do the things I do. They’re the ones who deserve the recognition.

I’m told I just need to learn to say thank you and move on, but when people are heaping this high praise, thank you doesn’t seem like enough. Not even close.

A friend once told me that she loves exclamation points because they add emphasis to what is otherwise ordinary. Okay - let’s give this a try...

Thank you!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

The Hall of Fame? Really?

Dear Ms. Kelly,

I have to confess that I spent a considerable amount of time trying to write "my story," as it pertains to my Bishop Ready High School Hall of Fame nomination. Like many, I have a difficult time with this type of notoriety as I just consider what I do…well, what I do. With that said, what follows is just a summary, rather than some dressed-up version. I don't know how to do that.

I have 3 daughters. That’s not what I say when folks ask because it’s awkward and uncomfortable for them sometimes. Running The MJB Foundation is my way of keeping alive the legacy of my daughter Meghan Joy. This isn’t the life’s work I would have guessed for myself, but it is a mission I embrace, a position I am proud to hold. I’m Meghan Joy’s Daddy, but I’m also very proud of Kailey and Delaney. Being there for all of my children, in whatever capacity, is my biggest priority.

Coming out of Bishop Ready I had no idea what I wanted to do with my life except that it would be better if it didn't involve math. Naturally then, I became a theatre major at The Ohio State University. I thought that was it, the career for me. I even came back and directed a couple of plays at Ready. At the end of the academic year I realized that I wasn't ready for college in the traditional sense. I auditioned and was accepted to the American Musical and Dramatic Academy in New York, but having spent more than $600 in less than 2 days there, and not having received a scholarship I decided instead to continue to work at the library, a job I'd had since my senior year of high school. 

In 1988, I met the woman who would later become my wife. I still didn't know what I wanted to be when I grew up, but I knew that I wanted to be the best husband and father I could possibly be. I think childhood and adolescence is absolutely the hardest thing any of us will have to deal with in our lives (save for extraordinary circumstances), and I knew I wanted to make it as easy as I possibly could for my children.

In 1993, our twin daughters Kailey and Meghan Joy were born. We were not expecting twins, and there were many complications. The whole story is here. 
http://www.mjbfoundation.org/about-the-mjb-foundation/the-story-of-meghan-joy/

In May of 1994, we were devastated by the death of Meghan Joy. In an attempt to find some peace, some reason, my wife and I began to reach out to friends and family who told us that Meghan had inspired them, that she had a profound effect on their lives and many others. To continue her memory and preserve her legacy we started holding a golf tournament every year as we, and many of our friends, were avid golfers. Each year for 9 years we had the golf outing and a big party dubbed "The MJB" to celebrate Meghan's life. We settled into a pattern, and daughter Delaney joined us in 1996.

In 2004, our 10th year, we wanted to do something big. In talking to a friend I realized that we could do more with the story of Meghan, that we should use her inspiration to help other children. Children who, like Meghan faced more than their fair share of challenges. Cerebral palsy, autism and a whole host of other diagnoses affect the daily lives of so many children, and the resources for helping them are few and far between. So began The MJB Foundation.

We held our first Golf for Joy, the 10th annual family golf tournament and party remembering Meghan's inspiration in June of 2004. We raised a little over $1,800. We gained our 501(c) 3 status in 2005. We never looked back. In 2010 we added a bowling event and, to date, we have raised more than $40,000 for children with challenges in Central Ohio. From our Mission Statement: By sponsoring recreational and educational activities, donating physical goods and services, and making monetary contributions we hope to bring Joy to these children. 

When we started The MJB Foundation it was easy to identify a need that wasn’t being met. Simply put, some children just don’t have access, or enough access, as the case may be. When Meghan was born in 1993 we had excellent insurance, everything was paid for. If we needed equipment or some adaptive device for Meghan, no matter the cost, it was covered. In 2004 this type of insurance for anyone was nothing more than a faded memory, and the situation has not improved today. 

Even the children with the most challenges are often left at the bottom of some bureaucratic list with not enough funding to obtain the resources they need to just be kids, to experience the Joy that should be childhood. 

The MJB Foundation wants to be there to fill those gaps, to find those children who aren’t experiencing that Joy and help them with the resources they need. Whether that is an adaptive tricycle, some kind of therapy, a special tray or just an adaptive piece of furniture; we work with organizations like FCBDD to identify children in need, provide the needed funding and send them a gift of Joy from The MJB Foundation. 

Our next event is coming up in November as we are presenting Ohio Idols for Independence – Helping Kids with Cerebral Palsy Find Their Voice in conjunction with Ohio Idol, and CP Parent Columbus, a Family Resource Group for Cerebral Palsy. Attendance is expected to exceed 1,500 and the event should raise more than any other we have held to date. 

So does that make me a Hall of Fame inductee? I don't know. Even when I eventually graduated from college in 2001 I wasn't sure what I wanted to be when I grow up, but I have found that I really like to work with kids, and I really like to work with non-profits, particularly organizations that benefit folks who get missed. My community is very important to me... with a lot of emphasis on family. I’m also currently the treasurer for the Westland Band Boosters. (I had some spare time I needed to fill.)

I told my girls that they didn't come with an instruction manual and that we were going to figure out the best way to do things together. As my children have grown I have stressed to them, and to their friends and other youth I have worked with, the importance of finding a way to enjoy their childhood. 

I coached my girls’ sports teams when they played, and I have been fortunate to be a "second Dad" to many of their friends. I still have kids today whose eyes light up as they greet me with an embrace. Many of them call me "Poppa Chow." That's enough of a reward for me.

iWalk for Ryan

We met our friends Greg and Kelly in 1999, (maybe late 1998). Over the course of the next few years we spent a lot of time with them, watched them get married, helped them move into an apartment together, and did all the things that fast friends do.

But unfortunately, in this world where we are all too busy and time progresses so rapidly eventually we just didn’t spend as much time together. They were moving into a new home and beginning to raise a family, Netter was closing down her day care business and rejoining the work force because our girls were much older and always involved with school activities. You know how it goes...

We made sure we got to see Kelly and Greg as often as possible, meeting for the occasional dinner, drinks, night out and such, but as they began to have a family we were all just always busy.

Fortunately, we would still try and reconnect on occasion, but Netter and I never really got to know their kids - at least not then.

As Kelly and Greg’s kids have gotten older we have all tried to make sure we still spend some time together with our girls babysitting their boys. Still, we didn’t really know the boys. We always kept up with what they were doing, activities they were involved in, Facebook pics and the like, but we didn’t know them.  

We knew that Kelly and Greg’s younger son Ryan had been diagnosed with Autism so we started to ask a few questions, not prying, not getting in their business, but you know these are our friends, younger friends, don’t see them as often as we’d like to friends, but friends and we are concerned.

When we would get together and the girls would babysit at their house we always said hi to Greg and Kelly’s boys, but they were flirting with the girls, bargaining for bedtimes with their Mom - typical kid stuff. One evening their oldest son was being particularly flirty, so much so that I didn’t even notice that Ryan was not involved until a little tug came at my knee.

I looked down to see the brightest smile and a little boy with his arms outstretched for a hug.

“Wow!” I thought, and I kneeled down to give him a hug and ask him how he was, and what he was up to. Was he going to have fun that night with the girls, stuff like that.

… and I didn’t think anything of it - until...

The next time we all got together the whole scene repeated itself, and the next time, and again.

This little boy was making time for me, time to say hello, and give me a hug and heck I admit it I was hooked.

Ryan has my heart big time. I would do anything for him.

Autism has always been one of my hot button conditions. Why on earth God, (or whoever you believe in) could screw around with children with something like that is just beyond any comprehension. I’m not going to get up on my soapbox, but suffice to say finding a cure for Autism is a cause I fully support.

Remember, I run The MJB Foundation. We’re all about making sure kids experience the Joy of childhood, the Joy that all kids should experience. Anything that gets in the way of that is not alright with me.

So yesterday, on behalf of The MJB Foundation and our family we all attended Walk Now for Autism Speaks at The Ohio State University here in Columbus. Joining Ryan and his family and friends to support this cause was the very least we could do for this magical little boy.

I shot a video for The MJB Foundation blog. I thought I might share it here too. Here I will also confess that this is take 2. I got a little emotional in the first take. If you notice the gaps in this take, that’s me “controlling” the emotion.



If you can’t see the video click here.

If you’d like to join Ryan’s team please click here.

Thanks.